Tuesday, October 18, 2011

another day, another doctor

One thing I have noticed is that depending on the day and the doctor, opinions change on what should be done with Avery.  Just the other day, the opinion was to hold the feeds at 6 ml and increase IV nutrition to help her grow. Then a new day and a new doctor and now we are advancing feeds in hopes of weening her off IV hopefully within a few weeks and thinks this is the best way to grow our little lady.  Since her little belly was getting super full getting all her milk in an hour, she is now on continuous feeds. You know that feeling when you eat SO much food in one sitting that you can barely breath? Well that is probably Avery's probably every time the were pumping her belly full of milk and she was having problems with breathing.  So now that she's on continuous feeds, she seems to be tolerating it even better.  And she's growing. Tonight she was up to 700 grams which is just over 1 lb 8 ounces. Only 300 more grams and we won't have to wear gloves every time we touch her anymore! I can't wait to hold her little hand skin on skin.
Today she was very anemic and had zero energy to do anything. It breaks my heart to see her so lethargic.  They were going to hold off on giving her another blood transfusion until tomorrow, but tonight her nurse said she is going to call her doctor to see if they can start it tonight because she is having more apnea and desats.  Hopefully by the time I see her tomorrow afternoon, she'll be a beautiful shade of tomato red. 
We were also told today that they found a spot on her head scan that could be some long, medical word that I wouldn't be able to write if I had to. Long story short, it has something to do w/ a possible cyst in her white matter that could hinder some developmental things.  According to her nurse we shouldn't be to worried, as this is something that is often questioned during preemies brain scans, but a lot of times never pans out to be anything. They will just monitor it closely. The good news is that there were no bleeds and the long medical term is the lesser of 2 evils.  Since there is nothing we can do either way, we will just put it in the hands of God and science. 
We continue to get to do daily holds and often twice daily if she is having a good day which means Bill and I don't have to split days.  She seems to absolutely love her holds and we love them equally as much. 

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